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Thyroid Eye Illness 101

Medically reviewed by Raymond Douglas, M.D., Ph.D., Cedars-Sinai

November 14-20, 2022 is Thyroid Eye Illness Consciousness Week.

What’s thyroid eye illness (TED)?

Thyroid eye illness, or TED, is an autoimmune dysfunction that causes irritation within the eye muscle groups, eyelids, tear glands and fatty tissues behind the attention. TED is typically known as Graves’ ophthalmopathy or Graves’ Eye Illness. It’s because TED most frequently happens as a part of Graves’ illness — an autoimmune situation that causes your immune system to assault the wholesome tissue of your thyroid, pores and skin and eyes.

You probably have Graves’ illness, you’ve gotten an elevated probability of growing thyroid eye illness. However TED is a uncommon illness and completely different from Graves’ illness and requires completely different remedy. Graves’ illness is the most typical explanation for hyperthyroidism, the place your physique produces an excessive amount of thyroid hormone. TED also can happen with hypothyroidism, the place your physique produces too little thyroid hormone, however that is a lot much less frequent. When thyroid hormone ranges go up and down, it may well make your TED signs worse. Thyroid eye illness is extra frequent in girls, however is commonly extra extreme in males.

Phases of thyroid eye illness (TED)

There are two phases of TED: lively (additionally known as acute) and inactive (additionally known as persistent). TED begins with an lively section the place you all of a sudden start to expertise signs. This section can final from about 6 months to 2 years. Through the inactive section, many of the signs are likely to get higher, however that is solely momentary. Scar tissue can type within the eyelid and eye muscle through the inactive section.

What could make thyroid eye illness (TED) worse?

Sure elements can set off signs or trigger flare-ups.

  • Smoking
  • Fluctuating hormones, equivalent to in being pregnant
  • Stress
  • Eye trauma or surgical procedure
  • Different autoimmune circumstances equivalent to Sort 1 diabetes, lupus or rheumatoid arthritis
  • Steroid use

What are the signs of thyroid eye illness (TED)?

TED is a severe illness that may worsen over time. Most individuals who’ve a thyroid situation equivalent to Graves’ illness begin noticing eye signs inside the first 6 months. These signs can embrace:

  • Dry, itching or gritty eyes
  • Eye tearing or redness
  • Ache behind the attention
  • Puffy pores and skin across the eyes or eyelid swelling
  • Double imaginative and prescient
  • Misaligned eyes or eyes that don’t work collectively
  • Bulging eyes (proptosis or exophthalmos)
  • Sensitivity to gentle

You may also have extra extreme signs equivalent to not having the ability to transfer your eyes or eyelids effectively, not having the ability to utterly shut your eyes or, in uncommon circumstances, lack of imaginative and prescient. This could have an effect on high quality of life as a result of it may well have an effect on your means to drive, learn and work and may affect your emotional well-being.

How does thyroid eye illness (TED) get identified?

Generally your HCP could make a prognosis of TED primarily based in your signs alone. To get a prognosis of thyroid eye illness, you will have a bodily examination, in addition to a watch examination. You may also have blood drawn to test the standing of your thyroid, together with imaginative and prescient checks and eyelid measurements.

It’d take visits to a couple of HCP to get a TED prognosis. You could be referred to see an ophthalmologist who’s a physician that focuses on eye and imaginative and prescient issues, particularly a thyroid eye illness specialist with superior coaching and expertise treating TED. A referral to an endocrinologist, who’s a physician that treats hormone points, may additionally be really helpful that will help you handle your thyroid situation.

Generally the signs of TED equivalent to dry, purple and irritated eyes might be mistaken for allergic reactions. Inform your HCP about all of your signs and medical historical past, so there may be not a delay in prognosis.

Managing thyroid eye illness (TED) signs

Whereas TED isn’t thought of to be curable, there are remedies that may assist handle your signs. The longer that TED stays untreated, the extra seemingly severe injury can happen. Remedy is commonly began within the acute section, however can nonetheless assist through the persistent section.

At residence, you need to use cool compresses or lubricating eye drops to present your dry or irritated eyes some reduction. Sun shades will help defend your eyes from the solar and wind. To assist with the swelling and strain close to or in your eyes, strive sleeping together with your head elevated.

Sure drugs will help with eye swelling, equivalent to steroid drugs. There are additionally newer prescription infusions out there that will assist relieve signs.

In case your TED signs are extreme, your HCP may advocate you’ve gotten surgical procedure. Orbital decompression might be carried out in the event you’re experiencing bulging eyes. This surgical procedure helps make the attention socket larger to lower the strain in your eyes. Eyelid surgical procedure will also be carried out in case your eyelids have pulled again an excessive amount of. This helps return them again to their regular place.

If you’re involved that you simply may need thyroid eye illness, speak together with your HCP. They’ll work with you to provide you with a remedy plan that may give you the results you want.

This useful resource was created with help from Horizon.

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